The past several months have been rough, and it occurred to me that I never said thank you to the people who mean the most to me, my friends. In my life, my friends are my family. I will be the first to admit I have been on an emotional roller coaster and taken you all with me, and I appreciate your willingness to travel the distance. The truth is, we are our own worst enemy, and I am honestly my own. For those of you who got text messages from my kids or tagged in pictures, sorry about that. Mommy finally learned how to lock her phone! I will continue to apologize to those friends that I drove absolutely insane, who are no longer speaking to me. I miss you, and I ask you to consider forgiving me. Truth be told, I am a different me than I used to be, and I miss me too.
The diagnosis is a flat pituitary gland. That is not the cause of Jacob’s seizures. We don’t have a cause for the seizures, but he has been worked up to the full dose, and no seizures since July. Jacob has been through so much this summer, but has held up so well. He really has been a trooper. With the exception of his pituitary gland, as of right now the rest of his systems seem to be working. They seem to be compensating for his pituitary, at least at this point. So, for now we don’t do anything but watch.
I am so thankful for all you who prayed for us, sent texts, facebook messages, and called to check on us (and my level of sanity). I wish there was a way to explain the importance of having support when you have a child with special needs. If you know someone who does, call them, send them a card, a text message, an e-mail. You don’t have to offer or promise us anything. Often what we need more than anything is just that human connection. Being a parent is hard. Being a parent of a child with special needs is exhausting. I was in a meeting this weekend about special needs ministry, and to hear the words “80% of marriages fail when there is a child with special needs” and to find yourself shaking your head in agreement, well, I guess you are a different person than you once were.
Today I am stronger. Today I am brave. Today, despite everything, I know it is all going to be okay. I thank you all for your love, encouragement, and support!